Nikki Sharp says medics told her son Hugo needed a gastrostomy tube inserting into his stomach to feed him.
The tot was born three months prematurely and spent nine weeks in the neonatal intensive care unit (NICU) at Hull Royal Infirmary.
But Hugo, now one year old and 14lbs in weight, is not on any waiting lists to fit a gastrostomy tube and has no follow-up appointments booked.
His mum said: “We were told he needs a gastrostomy tube because he is classed as ‘failure to thrive’ as he is not getting enough nutrition. They said he needs the tube to gain weight and develop.
“He’s suffered his whole life, he has tummy cramps and diarrhoea, it’s never stopped.
“We thought we were on the waiting list but yesterday the dietitian said she couldn’t see any appointments that had been made, there’s no follow ups to see him again, he’s not been put on the list for anything.
“They basically said the consultant forgot to press send on the referral.”
The mum said Hugo is now refusing the milk he was recently prescribed, but without an appointment with the consultant, she can’t get a prescription for any other milk.
She added: “We don’t have any milk whatsoever, a gastro doctor needs to prescribe it. We have tried it for four weeks as they told us to, but it’s not worked and he needs to go back on what he was on but without an appointment they‘ve left him to starve.
“All these consultants that we’ve got are supposed to come together and make a plan. All they say is go to PALS to make a complaint, but in the meantime they’re not looking after our son.
“There’s no duty of care for him whatsoever. They’ve just left him, there’s nothing more for Hugo.”
But she said she does not know where to turn next…Continue Reading